Last year the Saoirse Foundation, launched a transport ambulance service especially for children called BUMBLEance. It’s a great idea for children as it makes traveling in an ambulance far less scary.
Bumbleance is looking to raise money to keep the ambulance on the road. If you think that this is a good idea, they would welcome a donation. And to put minds at rest, I can say for certain that funds raised will be used for this very purpose and not to pay any fat cat executive salaries. Text buzz to 50300 for a donation. Sorry if this seems like a spammy request.
For background, there was an article in last weeks Irish Independent that tells a bit about the terribly sad story of Tony and Mary Heffernan and their two children, Saoirse and Liam. You can read it here. Since their children got sick, Tony and Mary have courageously started several new charities including:
- Bee for Battens, a charity whose aim is to raise awareness and support for those affected by Batten Disease, a rare disorder of the nervous system that usually manifests itself in childhood.Early symptoms of Batten disease (or NCL) usually appear in childhood when parents or doctors may notice a child begin to develop vision problems or seizures. In some cases the early signs are subtle, taking the form of personality and behaviour changes, delayed speech, slow learning, clumsiness or stumbling. Over time, affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Children become totally disabled and eventually die.Batten disease is not contagious nor, at this time, preventable. To date it has always been fatal. Here is a short video telling the story of Tony and Marys daughter Saoirse.
- Liams Lodge, while this isn’t yet a reality, Liams Lodge will be a respite centre for thousands of Irish families who care for children with debilitating disorders and life limiting conditions. Located outside Tralee and close to Kerry General Hospital, phase one will see an initial ten specially designed units of Liam’s Lodge constructed to provide a week of much needed respite for 520 families each year. In the longer term it will grow to thirty units on our site, supplemented by a number of satellite Lodges around Ireland. Liam’s Lodge will cater for medical, educational and recreational needs of the families during this special week. Families can also receive training in the extra skills required to care for highly dependent children. Siblings will enjoy quality time with family outings arranged and the on site “Dino” clubs with facilities to entertain teens and younger children.
- Bumbleance, Ireland’s and the World’s first interactive ambulance service designed specifically for children.
If you are interested in learning more about the Saoirse Foundation or reaching out to them, I have included their details below:
- Bee for Battens
- Liams Lodge