Home » Charity » A charity I admire

A charity I admire

Wordle

Wordle: Seanog1982

There was an error retrieving images from Instagram. An attempt will be remade in a few minutes.

Goodreads

Last year the Saoirse Foundation, launched a transport ambulance service especially for children called BUMBLEance. It’s a great idea for children as it makes traveling in an ambulance far less scary.

Bumbleance is looking to raise money to keep the ambulance on the road. If you think that this is a good idea, they would welcome a donation. And to put minds at rest, I can say for certain that funds raised will be used for this very purpose and not to pay any fat cat executive salaries. Text buzz to 50300 for a donation. Sorry if this seems like a spammy request.

For background, there was an article in last weeks Irish Independent that tells a bit about the terribly sad story of Tony and Mary Heffernan and their two children, Saoirse and Liam. You can read it here. Since their children got sick, Tony and Mary have courageously started several new charities including:

    • Bee for Battens, a charity whose aim is to raise awareness and support for those affected by Batten Disease, a rare disorder of the nervous system that usually manifests itself in childhood.Early symptoms of Batten disease (or NCL) usually appear in childhood when parents or doctors may notice a child begin to develop vision problems or seizures. In some cases the early signs are subtle, taking the form of personality and behaviour changes, delayed speech, slow learning, clumsiness or stumbling. Over time, affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Children become totally disabled and eventually die.Batten disease is not contagious nor, at this time, preventable. To date it has always been fatal. Here is a short video telling the story of Tony and Marys daughter Saoirse.
  • Liams Lodge, while this isn’t yet a reality, Liams Lodge will be a respite centre for thousands of Irish families who care for children with debilitating disorders and life limiting conditions. Located outside Tralee and close to Kerry General Hospital, phase one will see an initial ten specially designed units of Liam’s Lodge constructed to provide a week of much needed respite for 520 families each year. In the longer term it will grow to thirty units on our site, supplemented by a number of satellite Lodges around Ireland. Liam’s Lodge will cater for medical, educational and recreational needs of the families during this special week. Families can also receive training in the extra skills required to care for highly dependent children. Siblings will enjoy quality time with family outings arranged and the on site “Dino” clubs with facilities to entertain teens and younger children.
  • Bumbleance, Ireland’s and the World’s first interactive ambulance service designed specifically for children.

If you are interested in learning more about the Saoirse Foundation or reaching out to them, I have included their details below:

  1. Bee for Battens
    Website: http://www.beeforbattens.org/
    Twitter: https://twitter.com/BeeForBattens
    Facebooks: https://www.facebook.com/pages/Bee-For-Battens
  2. Liams Lodge
    Website: http://liamslodge.com
    Twitter: https://twitter.com/LiamsLodge
    Facebook: https://www.facebook.com/LiamsLodge
  3. Bumbleance
    Website: http://www.bumbleance.com
    Twitter: https://twitter.com/BUMBLEance
    Facebook: https://www.facebook.com/BUMBLEance
Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

ultimatemindsettoday

A great WordPress.com site

WordCamp London 2016

8th - 10th April 2016

Inarticulate ramblings of a management consultant

the day to day experiences of a consultant operating in weird and wonderful client situations

TechCrunch

Startup and Technology News

Dan Sanchez

Thoughts on Digital Marketing & Design

6thingsimpossible

People are strange, technology is great, change is good.

Study in Ireland

Connect to Excellence.Study in Ireland.

Ukulele Wednesdays

Est 2007, 1st free Ukulele Jam in London.

REWIRED STATE NATIONAL HACK THE GOVERNMENT

Rewired States Annual Hack day to Code a better Country

My Island View

Educational, Disconnected Utterances

Login with Lily

A blog about my discoveries as a communications major

A Blog From Craig Holliday

The ongoing saga of a man trying to break into the web development field...

Alex's Blog

First place for people interested in Web Design and Development with new interesting content every day.

Website Design and Development

We are leading Website Design and development company in India, Australia and California-USA.

%d bloggers like this: